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The Project ReMind Blog | FTD Charity Campaigns and Research News

Raising Awareness for FTD: Katie Brandt Takes Action

[fa icon="calendar'] Feb 23, 2015 9:28:27 PM / by Emma Greenman

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Katie Brandt’s incredible efforts to spread awareness and support families suffering from FTD are highlighted in this article in the Boston Globe.  Like many FTD patients, it took months and several misdiagnoses before doctors were able to diagnose Katie’s husband Mike Brandt with Frontotemporal Degeneration (FTD).  Mike Brandt was just 29 when he was diagnosed.

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5 Tips to Get Race Day Ready

[fa icon="calendar'] Feb 23, 2015 8:27:00 PM / by Emma Greenman

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Are the frigid temperatures and endless snowstorms slowing down your workout routine?  Take a look at these 5 tips from Team Project ReMind to get race day ready.

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FTD Research Receives $30 Million from NIH

[fa icon="calendar'] Feb 18, 2015 11:01:58 AM / by Emma Greenman

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The National Institutes of Health has granted $30 million over the next five years to FTD research.  Frontotemporal Degenertion, a rare brain disease affecting 50,000 to 60,000 Americans, is progressive degeneration in the frontal and temporal lobes of the brain, causing unusual behavior in patients.

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Robin Williams' Autopsy Showed That He Had Lewy Body Dementia

[fa icon="calendar'] Feb 16, 2015 11:21:00 AM / by Emma Greenman

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Robin Williams' autopsy showed that he had Lewy Body Dementia.  Lewy Body Dementia is a progressive dementia that involves the death of cells in the brain’s outer layer and part of the mid-brain.  The disease is very similar to Frontotemporal Degeneration which involves the degeneration of nerve cells in the frontal or temporal lobes of the brain.  Lewy Body Dementia, like Frontotemporal Degeneration is frequently misdiagnosed as Parkinson’s disease. 

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FTD Research: An Exciting New Study

[fa icon="calendar'] Feb 9, 2015 5:03:00 PM / by Emma Greenman

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A new stem cell study reveals potential future treatment options for Frontotemporal Degeneration (FTD).  The Guardian highlights an FTD research study performed at the Leuven Research Institute for Neuroscience and Disease in Belgium.  

Defective stem cells grown in the lab revealed a signalling pathway linked to frontotemporal dementia (FTD).  Prof Philip Van Damme said: “Our findings suggest that signalling events required for neurodevelopment may also play major roles in neurodegeneration."

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Recent Article Discusses Different Types of FTD

[fa icon="calendar'] Feb 9, 2015 2:54:00 PM / by Emma Greenman

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This recent article in The Delphos Herald highlights the differences between Frontotemporal Degeneration (FTD) and Alzheimer's and delves into the different types of FTD.

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A look back at our 2013 FTD Charity Campaign

[fa icon="calendar'] Feb 7, 2015 12:49:00 PM / by Emma Greenman

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In 2013, our third year running the Cape Relay, our group grew to 72 participants and Project Remind was proud to donate a $50,000 gift to Brigham and Women’s Hospital (BWH) to support FTD research.  The organization raised the funds through its Team Project ReMind race, a two-day road race covering 1,140 miles.  Seventy-two runners participated in the May 3 and 4 event to raise awareness and funds for FTD research. Check out the 2013 post-race video. 

The funds raised during our 2013 FTD charity campaign will support the FTD research of BWH physicians Dennis Selkoe, MD, and Scott Michael McGinnis, MD.  Their ultimate goal is to move the field toward more effective clinical trials, bringing treatments to patients who currently lack options.

Dr. Selkoe is the Co-Director of the Center for Neurologic Diseases in the Department of Neurology at BWH, as well as the Vincent and Stella Coates Professor of Neurologic Diseases at Harvard Medical School.  He has devoted his career to the use of molecular approaches to study Alzheimer's disease (AD), dementia, Parkinson’s disease, and related basic biological questions. 

Dr. McGinnis is a staff neurologist at BWH and Massachusetts General Hospitals. His clinical and research focus is on improving diagnostic and treatment methods in neurodegenerative dementias, with a specific interest in clinical-pathological correlations in frontotemporal dementias and atypical, non-memory presentations of Alzheimer disease.

In 2014, members of Team Project ReMind visited the Center for Neurologic Diseases to see the hard work Dr. Selkoe and Dr. McGinnis are doing to make breakthroughs with this horrific disease.  You can see some pictures of the visit on A Coastal Point of View.

Last year, life got in the way and we weren't able to put the time and effort required to really knock the socks off our 2014 FTD charity campaign so our running shoes and our neon outfits sat dormant in our closets.

We're back in 2015 looking to grow once more!

Running to Raise Awareness for FTD Team Project ReMind

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